Invitation To All In The Sickle Cell Community Sickle Cell These programs, activities and events are designed to help you get your community involved in improving access to care and generating support for finding a universal cure for sickle cell disease. ask your civic leaders to light up the town’s municipal buildings with red lights on june 19. Patients, parents, families, support groups, sickle cell ngos, sickle cell experts and all interested in the sickle cell cause, you will agree that there is a great need for patient education around effective treatment and cure for sickle cell disease, engendering hope individually and collectively.
Empowering The Sickle Cell Community A community awareness campaign to celebrate world sickle cell awareness day on june 19, 2025. we invite you to join with friends, family, neighbors and others in your community, as people around the nation and across the. A day of community action on world sickle cell day community outreach & engagement – tips • develop an engaging social media campaign that encourages supporters to share posts about going to your gathering and world sickle cell day. • post on community bulletin boards and like minded fb pages groups. There is a long history of community based organizations (cbos) and patient organizations advocating for and serving the needs of the sickle cell disease (scd) population and generating awareness about scd and sickle cell trait (sct). Sickle cell disease masterclass – the current state of sickle cell disease treatments: pipelines or pipe dreams? the sickle cell disease association of america (scdaa) invites you to attend an upcoming sickle.
Sickle Cell Events There is a long history of community based organizations (cbos) and patient organizations advocating for and serving the needs of the sickle cell disease (scd) population and generating awareness about scd and sickle cell trait (sct). Sickle cell disease masterclass – the current state of sickle cell disease treatments: pipelines or pipe dreams? the sickle cell disease association of america (scdaa) invites you to attend an upcoming sickle. The sickle cell consortium is a unified platform to bring the sickle cell patient to the forefront of all matters regarding health, research, advocacy, education and awareness. People living with scd and their caregivers are invited to sign up to submit videos of themselves performing original spoken word pieces about their experience with scd. to learn more about the contest details and how to submit a video, please email [email protected] or visit facebook sicklecellspeaks. People living with sickle cell need support and understanding from their family, friends, doctors, nurses, and patient groups. we enhance this support with our children and young people’s peer mentoring scheme and our helpline service.
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